Guía de atención inicial para familiares y cuidadores de niños diagnosticados con el trastorno del espectro autista.

Abstract

For Joan de Deu (2013), “when a child is diagnosed with a deficiency, the family environment suffers a strong blow and the parents experience different psychological and emotional phases”. This research has a qualitative approach, it is cross-sectional with a descriptive scope, there was a population of 80 family members and caregivers of children diagnosed with ASD, belonging to the Asperger La Voz collective, from which selecting a sample of 13 relatives between the ages of 30 to 55 years. Data collection techniques; structured interview, semi-structured interview and focus group. The categories of coping, support networks and adaptation were addressed. Objective; design the prototype of an initial care guide for family members and caregivers of children diagnosed with ASD, through qualitative research, based on the difficulties and coping processes, generating greater assertiveness in the process of adaptation to the diagnosed condition. Results; Receiving the diagnosis generates mental discomfort in the father, negative emotions due to ignorance of the diagnosis and the uncertainty of the future of their children, the majority of parents, due to the impact of the diagnosis, have separated, taking the responsibility of the child only one of them, with the family being the main source of support for the father or mother, evidencing the appropriateness of tools or strategies that have directly or indirectly helped their peace of mind, concluding with the importance of developing an initial care guide for the parents with children with ASD.