Nivel de carga en madres como cuidadora primaria de niños con diagnóstico oncológico.

Abstract

Cancer is currently a chronic non-communicable disease which is important to be approached from an interdisciplinary perspective, in order to achieve adequate coping and adaptation to the facts related to this disease. Similarly, it should be noted that cancer in children has different changes than in adults in terms of type, evolution, treatment and quality of life. Upon knowing the diagnosis and prognosis, the caregiver together with the child who presents the oncological diagnosis begins a process where a search for coping strategies is developed in the face of the situation because the burden of the caregiver increases. Therefore, this research aims to measure the level of workload of mothers as a primary caregiver of children with an oncological diagnosis of the Soñar Foundation of the city of Cúcuta, from quantitative strategies proposing in the future a practical guide that facilitates the quality of life and the decrease in the level of burden of each of them from the personal, family and social areas. It was carried out under the quantitative, descriptive approach, where the researcher intends to measure or collect information independently or jointly on the concepts or variables to which they refer; in a sample of six mothers who occupy the role of primary caregiver of children with an oncological diagnosis of the Soñar Foundation in the city of Cúcuta. Collection techniques of the participant observation and the Zarit scale were used, which measures the level of workload of the caregiver, which allowed us to obtain as results that people who take care of wounds evaluated by the scale meter, the numbers according to the categorized categories belong to the scale that indicates an absence of overload in the laboratories.